MDAorg - Tweet Data Analysis
Tweets Analysis - Keyword: @MDAorg
Published March 8, 2023
Overview
Tweets covering
10 days
Latest tweet was on
2023-02-22
Earliest tweet was on
2023-02-11
Total number of tweets analysed
78
Average age of authors' accounts
9 years
Summarization
The tweets are related to raising awareness and funds for the Muscular Dystrophy Association (MDA) through dough ball sales, pizza auctions, earning grant money, webinars, and partnerships with other organizations. Five grants were awarded to health economists at TuftsCEVR and other organizations have also been given grants. The MDA has also released a statement indicating they provide care via MDA Care Centers and have a discussion group to discuss cases.
Topic Modeling
- Fundraising for MDA charity organization
- Medical research on neuromuscular diseases
- Grant awards to the MDA organization
- Medical treatments for rare genetic diseases
- Clinical and scientific conferences related to muscular dystrophy (MDA)
Emotional Analysis
The emotions expressed in these tweets range from determination and excitement to gratitude and appreciation. The people behind the tweets are working hard to fundraise and advocate for the Muscular Dystrophy Association (MDA), and are grateful for the grants and support they have received from the organization. There is also a sense of hope for the future, as people are working together to create meaningful change and develop equitable reimbursement systems. Finally, there is a sense of anticipation as people look forward to upcoming events such as the MDA Clinical and Scientific Conference.
Trend Analysis
- Raising funds to aid @MDAorg through various efforts.
- Research into and advocacy for neuromuscular disease treatments.
- Acknowledgement of and support for research teams, particularly at @TuftsCEVR.
- Development of a more equitable system for reimbursement of treatments for ultra-rare genetic diseases.
- Promoting awareness and initiatives to broaden recognition of the rare disease community.
Disclaimer: The text analysis on twtdata.com, powered by OpenAI, does not represent the views of twtdata.com or its affiliates. The analysis is for informational purposes only and not an endorsement of any viewpoint.
Types of Tweets
Number of Retweets
27
34% of total
Number of Original tweets
27
34% of total
Number of tweets that were Quotes
6
7% of total
Number of tweets that were Replies
22
28% of total
Number of tweets that contain Hashtags
25
32% of total
Number of tweets that contain Mentions
78
100% of total
Devices Used to Tweet
Top 5 Devices
| Source | Count |
|---|---|
| Twitter for iPhone | 24 |
| Twitter Web App | 20 |
| Twitter for Android | 16 |
| Hootsuite Inc. | 6 |
| Twitter for iPad | 5 |
Device Distribution
Top 10 Accounts by Followers
| Username | Name | Bio | Followers count |
|---|---|---|---|
| NALC_National | Letter Carriers | Founded in 1889, NALC represents city letter carriers employed by @USPS, delivering to 152 million homes/businesses in every city, suburb and town in America. | 29,591 |
| TuftsMedicalCtr | Tufts Medical Center | Tufts Medical Center is an academic teaching hospital in Boston. | 23,160 |
| MDAorg | Muscular Dystrophy Association | MDA is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. | 21,074 |
| medshronline | MedShr | MedShr -The App for Doctors, is a HIPAA & GMC compliant network for medical professionals to discuss clinical cases. MedShr now has over 2M members worldwide. | 8,400 |
| MGHNeurology | MGH Neurology | On a mission to find new treatments and cures to eliminate the devastating impact of neurological disorders. | 7,653 |
| CureRareDisease | Cure Rare Disease | 501(c)(3) nonprofit leading a nationwide collaboration of researchers and clinicians in order to develop life-saving therapeutics for rare diseases. | 4,533 |
| RareDisease_Adv | Rare Disease Advisor | Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease. | 3,563 |
| NPNowZinn | Mark Zinn | Weather Wonk. Communicator. The Grand Duke of Rock and Roll 🎸🎤Check your local listings 📺📻 🇺🇸Dual Citizen🇮🇪 #mowx #kswx #AMDG #12in23 | 2,973 |
| TuftsCEVR | CEVR | Center for the Evaluation of Value & Risk in Health (CEVR) at @TuftsMedicalCtr. Postings and RTs are not endorsements. | 2,970 |
| LJ9111011 | LindaJ | RIP My Little Brother Andy, Buffalo Bills Fan, Sabres Fan, Syracuse Fan, Super Hero aka Nurse, Former Paramedic. Negative need not follow. Cancer Sucks! | 2,939 |
Top 10 Accounts by Friends
| Username | Name | Bio | Followers count |
|---|---|---|---|
| LJ9111011 | LindaJ | RIP My Little Brother Andy, Buffalo Bills Fan, Sabres Fan, Syracuse Fan, Super Hero aka Nurse, Former Paramedic. Negative need not follow. Cancer Sucks! | 4,743 |
| tugboatMatt | NativeSon | Christian, Dad, Native 🏝son, Noles fan, First generation ALS survivor 🙏🏻 | 4,225 |
| NALC_National | Letter Carriers | Founded in 1889, NALC represents city letter carriers employed by @USPS, delivering to 152 million homes/businesses in every city, suburb and town in America. | 3,933 |
| medshronline | MedShr | MedShr -The App for Doctors, is a HIPAA & GMC compliant network for medical professionals to discuss clinical cases. MedShr now has over 2M members worldwide. | 2,924 |
| MaryFiance | Mary Fiance | VP, PR @MDAorg | #RareDisease, #MuscularDystrophy, #NMD, #ALS, #PR | NYC | Previously @92Y, @jazzdotorg @LincolnCenter #ViewsAreMyOwn | 2,849 |
| TuftsCEVR | CEVR | Center for the Evaluation of Value & Risk in Health (CEVR) at @TuftsMedicalCtr. Postings and RTs are not endorsements. | 2,436 |
| MDAorg | Muscular Dystrophy Association | MDA is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. | 2,008 |
| Drug_Mart | Discount Drug Mart | We Save You the Runaround.Discount Drug Mart Is Your Immunization Destination™ #DrugMart #DDM | 1,471 |
| ksweeney513 | dr. kristi sweeney | assoc prof & director of sport management, univ of north florida, Iowa girl at ❤️, mother, thinker, doer, believer, sports lover | 1,407 |
| mollytoba | Molly Beinfeld | Director, SPEC Project, CEVR. Evidence-based medicine is my passion and my job, lucky me! Tweets are my own. | 1,204 |
Most Active Users
| Username | Bio | Number of tweets |
|---|---|---|
| MaryFiance | VP, PR @MDAorg | #RareDisease, #MuscularDystrophy, #NMD, #ALS, #PR | NYC | Previously @92Y, @jazzdotorg @LincolnCenter #ViewsAreMyOwn | 8 |
| therealbillyz | Tripping Billy--Home Cook/Pizza MakerLiving with Muscular Dystrophy (LGMD2L)--IL Ambassador for @mdaorg--https://t.co/SXxkrQmFfB | 7 |
| JeffShoe2 | - | 3 |
| CureCMD | Cure CMD’s mission is to bring treatments & cures for Congenital Muscular Dystrophies. | 3 |
| joseinspires | Corporate Speaker | Global Motivator | Mindset Disruptor | #1 Best-Selling Author | Featured in @Entrepreneur @Forbes @USAToday @NBC6 @WSVN @ABC @FOXNews | 3 |
| TuftsCEVR | Center for the Evaluation of Value & Risk in Health (CEVR) at @TuftsMedicalCtr. Postings and RTs are not endorsements. | 3 |
| OPMDadvocate | Advocates for Oculopharyngeal Muscular Dystrophy. | 2 |
| RichHorgan | Founder and CEO of @CureRareDisease. Rare Disease Advocate and R&D Accelerator. @HarvardHBS ‘18. Forbes 30 Under 30. | 2 |
| MDAorg | MDA is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. | 2 |
| tycheleturner | PhD Human Genetics & Molecular Biology, PI @TNTurnerLab @WashUGenetics, Tweets/views are my own. | 2 |
Tweets Per Day
Top 10 Tweets by Retweets
| ID | Text | Retweet count |
|---|---|---|
| 1626961013999300609 | Has your branch held a successful fundraising event for @mdaorg recently? How has your branch come together to help #DeliverTheCure? Email us at [email protected]. There's a chance your branch will … | 4 |
| 1626314279208071168 | We are pleased to congratulate CEVR’s @jchambers241 @TuftsMedicalCtr as one of the Muscular Dystrophy Association Advocacy Collaboration Grant recipients!@MDAorg Read more here: https://t.co/l0eWKbr9rb | 4 |
| 1628061724719869952 | Join us on 2/23 5:00 pm EST for a webinar about the HEALEY ALS Platform Trial. @MeritCudkowicz will present updates on the Platform Trial and answer questions from the audience. … | 4 |
| 1626681682916003847 | Congratulations to Dr. James Chambers and his team of health economists at @TuftsCEVR for receiving 1 of 5 Advocacy Collaboration Grants awarded by @MDAorg. https://t.co/5NcN91Hvlz | 3 |
| 1626242406206308362 | OPMD Association is thrilled to announce we are recipients of @MDAorg Advocacy Collaboration Grant, to fund the OPMD Association Community Survey Project! #OPMD #OPMDAssociation https://t.co/vLB2Dkjlqk https://t.co/MQVYjpGRE0 | 2 |
| 1626238902800642048 | Exciting news! CRD has received a $30,000 grant from the @mdaorg to tackle the challenge of paying for therapies for ultra-rare genetic diseases. Together, we aim to develop a more … | 2 |
| 1626264847800229889 | Looking forward to this collab with @MDAorg to evaluate Medicaid and commercial plan coverage for neuromuscular disease tx! Research + advocacy = meaningful change! https://t.co/iLSUpumkzy | 1 |
| 1626258533711855616 | Couldn’t be more excited to partner with the @MDAorg on critical research examining patient access to treatments for neuromuscular diseases. @TuftsCEVR @TuftsMedicalCtr https://t.co/aLrNPTz51S | 1 |
| 1626728421517582336 | Unreal day. Thanks to everyone who ordered. Gonna have one more pizza available Monday via auction. 100% of the proceeds going to my @MDAorg fundraiser. https://t.co/yO8Gp9iam0 | 1 |
| 1624553877000388610 | Many exciting programs at #MDAconference 2023!!!! I will give a talk on immune checkpoint inhibitor (#ICI) myopathy and atypical #NecrotizingAutoimmuneMyopathy (#NAM). Thanks @MDAorg and Dr. Mozaffar for the invitation. https://t.co/OYZVEi5Rn5 | 1 |
Top 10 Tweets by Likes
| ID | Text | Like count |
|---|---|---|
| 1627832481964597249 | Hand-rolled 40 dough balls today in preparation for tomorrow's popup. My body feels like hell. Muscular Dystrophy sucks but hopefully raising a nice amount for @MDAorg https://t.co/wLA9VAcMI7 | 24 |
| 1626728421517582336 | Unreal day. Thanks to everyone who ordered. Gonna have one more pizza available Monday via auction. 100% of the proceeds going to my @MDAorg fundraiser. https://t.co/yO8Gp9iam0 | 17 |
| 1626681682916003847 | Congratulations to Dr. James Chambers and his team of health economists at @TuftsCEVR for receiving 1 of 5 Advocacy Collaboration Grants awarded by @MDAorg. https://t.co/5NcN91Hvlz | 10 |
| 1626264847800229889 | Looking forward to this collab with @MDAorg to evaluate Medicaid and commercial plan coverage for neuromuscular disease tx! Research + advocacy = meaningful change! https://t.co/iLSUpumkzy | 8 |
| 1626238902800642048 | Exciting news! CRD has received a $30,000 grant from the @mdaorg to tackle the challenge of paying for therapies for ultra-rare genetic diseases. Together, we aim to develop a more … | 7 |
| 1626961013999300609 | Has your branch held a successful fundraising event for @mdaorg recently? How has your branch come together to help #DeliverTheCure? Email us at [email protected]. There's a chance your branch will … | 7 |
| 1626314279208071168 | We are pleased to congratulate CEVR’s @jchambers241 @TuftsMedicalCtr as one of the Muscular Dystrophy Association Advocacy Collaboration Grant recipients!@MDAorg Read more here: https://t.co/l0eWKbr9rb | 7 |
| 1626258533711855616 | Couldn’t be more excited to partner with the @MDAorg on critical research examining patient access to treatments for neuromuscular diseases. @TuftsCEVR @TuftsMedicalCtr https://t.co/aLrNPTz51S | 7 |
| 1624553877000388610 | Many exciting programs at #MDAconference 2023!!!! I will give a talk on immune checkpoint inhibitor (#ICI) myopathy and atypical #NecrotizingAutoimmuneMyopathy (#NAM). Thanks @MDAorg and Dr. Mozaffar for the invitation. https://t.co/OYZVEi5Rn5 | 7 |
| 1628061724719869952 | Join us on 2/23 5:00 pm EST for a webinar about the HEALEY ALS Platform Trial. @MeritCudkowicz will present updates on the Platform Trial and answer questions from the audience. … | 7 |
Top Languages Used
Top 10 Hashtags
| Hashtag | Count |
|---|---|
| #mdaconference | 5 |
| #mda | 5 |
| #neuromuscular | 4 |
| #shamrocks | 3 |
| #musculardystrophy | 3 |
| #billsmafia | 2 |
| #deliverthecure | 2 |
| #opmd | 2 |
| #opmdassociation | 2 |
| #ici | 2 |
Top 10 Mentions
| Mention | Count |
|---|---|
| @mdaorg | 79 |
| @tuftsmedicalctr | 10 |
| @therealbillyz | 6 |
| @foxnews | 5 |
| @tuftscevr | 5 |
| @allwheelsup | 5 |
| @cureraredisease | 5 |
| @opmdadvocate | 5 |
| @curecmd | 4 |
| @thenyny7 | 3 |
Wordcloud of Tweets
Emoji Analysis
Average emojis per tweet:
5
Emojis Used
| Emoji | Count | Emoji Text |
|---|---|---|
| 🙌🏽 | 2 | raising_hands_medium_skin_tone |
| 😆 | 1 | grinning_squinting_face |
| 💯 | 1 | hundred_points |
Emoji Groups
| Emoji Group | Count |
|---|---|
| Smileys & Emotion | 2 |
| People & Body | 2 |
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